Our book is not like any other e-book you've ever read on learning how to overcome strabismus.
Why? Well, for starters we couldn't find any other references aimed at helping you overcome the emotional barriers brought into your life by strabismus. We looked when we began our journey 4 years ago and every day since then as we continued down our journey. This is why we felt it was important to finally document and publish our story, complete with over 100 full color photos including pre- and post- surgery photos, multiple chapters dealing with mother and father perspectives, insurance matters, as well as the defeats and triumphs that we experienced. We also share our deepest emotional moments as we walked this journey with our first born child.
After learning to live with strabismus in our family and after sharing our story and experiences with others, we finally decided to write down our story to share with others around the world. We know that you may be going through some of the same obstacles and emotionally stressful moments that we encountered. We also know that during your doctors visits you may be receiving great medical information, but very little (if any) emotional support. We've been there and we took this into account as we wrote our book in a very easy to follow conversational format (much like this website).
As you may have found out by now, there is no cure for strabismus. However there are effective therapies and treatments that can help the condition and symptoms of strabismus. Often this means surgery and often multiple surgeries and even eye patch treatment and glasses to avoid the onset of amblyopia (lazy eye).
With all of this going on in your family's life
a larger picture of obstacles begins to form
beyond the medical treatment of your child.
This larger picture includes the emotional impact,
sociological implications, frustration,
stress, and often financial worry. |
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Our e-book, "Our Journey with Strabismus" was written with a very specific and intentional perspective in mind. As we recounted the struggles we faced, we wrote about the specific experience, the things we felt emotionally, and what we did to overcome that particular situation. Things like overcoming insurance obstacles, second and even third opinions, multiple surgeries, and the general treatment plan for our child.
As we lived through the initial stages of learning to live with strabismus in our family, we faced endless worry, sleepless nights, and even guilt as we wondered if we were doing enough and if the decisions we were making were the right decisions.
Moreover, we also included sections directly from the different perspectives of a father and mother. We know that parents see the world differently, even in the closest households. We know because we've been there. The reality is, a resource like our e-book would have been a welcomed gift from heaven and we are excited to be able to offer our experience and insight through this resource.
Wouldn't it be great to go to sleep tonight comfortably and peacefully with new knowledge and insight from a family that has been where you are now?
Looking back on our experience, the thing that we did not have was the advice and full support of others that had already gone through our situation. Our e-book offers exactly that and gives you the courage and motivation to overcome the emotional obstacles that will present themselves to you along your journey in dealing with strabismus.
How would you feel if you could wake up with confidence each day knowing that you have the right tools and resources to get your family through the tough part of this journey? Remember, the medical part is a breeze. It's the other stuff that gets you down.
Once you start, you're likely to keep reading until you finish. And by the time you've finished reading you'll feel empowered, energized, and excited to move forward and overcome the battle with strabismus. Imagine sharing with others and your child, aspects of your situation that you have previously been either too embarrassed to talk about or didn't quite know how to discuss with those you felt didn't understand your situation. It truly is possible, but you need to know how. That's what this new e-book can help you do.
The photos above show our son before his first surgery and nine months after his 4th and last surgery. I remember the days when we would walk through the grocery store and people would stare. They wouldn't often say anything, and when they did it often came out awkward or rude and often times our own responses were very defensive. We loved our child and we were going through different treatment options (including glasses and eye-patching between surgeries), but we were not fully comfortable with the way the rest of the world saw our son and we often felt like outcasts or that we had to occasionally be rude to counter someone else's stare or comments. Today we look back and wish we would have used those moments to educate the rest of the world on strabismus and help them understand some of the things that we go through as parents of children with strabismus.
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